This special issue of the journal will be a scientific communication activity of the PERSIST project (Patients-centred SurvivorShIp care plan after Cancer treatments based on Big Data and Artificial Intelligence technologies), funded by the European Union’s Horizon 2020 research and innovation programme under grant agreement No. 875406.
The submission deadline is January 1st, 2021. All papers must be submitted as PDFs, and formatted according to the ESMP guidelines.
About the call theme
On the ESMP website, the call theme of “biological citizenship” is explained:
“Adriana Petryna first introduced the term “biological citizenship” in her ethnography of the aftermath of the Chernobyl post-disaster emergency, Life Exposed [Petryna A. 2002. Life Exposed: Biological Citizens after Chernobyl. Princeton, NJ: Princeton University Press.]. As stated by Rose and Novas, biological citizenship can be defined as an active form of citizenship that produces new forms of belonging, claims to acknowledgement of experiences, and access to resources revolving around biological and medical claims.
…This special issue aims at investigating the multidisciplinary background of the expanding moral claim to bio-sociality and bio-citizenship. As a matter of fact, being a bio-citizen carries an underlying demand for more suitable public policies and socio-economic rights to shape the universalization of fragility and vulnerability as human conditions in contemporary society. On the one hand, bio-citizenship may therefore be viewed as a proactive proposition for patient-centred healthcare within an enlarged framework of cultural and political meanings: the patient is no longer a subject, who happens to suffer from a specific impairment at a specific moment in time; rather, being a patient is a universal condition, shared by all human beings.
The idea is to move from a generally negative perception of the term “patient” to a neutral or positive perception of the same concept. On the other hand, however, biological citizenship also implies an underlying and constant connection between the patient status and the involvement of health data in order for patient-centred technologies to run efficiently. This entails new (cyber) risks and vulnerabilities that might not only impoverish the empathic and emotional quality of the care relationship, but also favour a concept of democratic citizenship based on a Big-data-oriented sovereignty, thus paving the way from bio-citizenship to bio-data-citizenship. This idiosyncrasy is very evident in the ongoing global experience of the COVID-19 pandemic. We are learning how contingent the necessity is to rethink the link between ethics, Big data, patient empowerment, and healthcare technology.”